We're here in frigid Minnesota after a short flight (frequent flyer miles were donated by some dear friends--thank you!). And now we are staying at the Ronald McDonald House by the U of MN Hospital...not two miles away from the bridge collapse from earlier this year.
Tomorrow we have a huge day scheduled:
8:00 - Arrive, meet BMT coordinator
8:30 - Labs
9:00 - Chest and spine x-ray
10:00 - EKG
11:00 - Echocardiogram
12:30 - Cardiology
1:00 - Genetics
3:00 - Line consult
Followers
About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
1 comment:
Greetings from icy Kansas. We are here, but our hearts are with you in Minn. We love you and thank you for keeping us posted on what is going on...lets us know how to pray for you. Loved the nap photo. The only problem I could see was that Jade's eyes were open. We are looking forward to your visit., and we are ready for Aggie...I got her some healthy treats to help her adjustment. Did you tell her how wierd we are??? I think we have some air miles we have not used. I will look into how to tranfer those. xoxoxoxoxo janie and bob
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