Rylie will frequently put two or three baby signs together to communicate. Some of her favorite signs:
Want
More
Play
Ball
Eat
Read
Happy
Bed
Yes
No
Cracker
Dog
Tomorrow Rylie will have her fifth enzyme replacement therapy at Children's. The doctor said last week that they'll keep a close eye on her for the next several weeks, because if a patient will have a reaction, it will usually happen between weeks five and eight. So far Rylie has tolerated the enzyme with no problems. In fact, Lyle and I think she is breathing better and her appetite has increased substantially. She has gained a pound and a half since she started the enzyme, and the doctor will actually increase the amount of enzyme slightly for the month of February.
We are scheduled to be back in Minnesota by March 10.
2 comments:
Wow! How fun that she can sign so many words. She is so adorable! I love the videos...I need to figure out how to post those. I am so technologically deficient. I love keeping updated with you like this.
Sooooo cute! What a good girl, responding for the camera. Keep 'em coming.
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