Thankfully, Rylie had no problems with her fifth IV ERT yesterday. They included a bag of emergency meds on her IV pole, but we didn't need them. We got to the hospital at 9:30 a.m., and we left at 3:30 p.m. The enzyme takes about 5 hours, then they flush her line for about 30 minutes. We have to wait another 30 minutes to just check vitals.
Getting my blood pressure taken is old hat.
Where's Dad?
Here's my synthetic enzyme! Looks like saline . . . but costs more.
Maybe my sock will fit on my hand?
There's Dad!
Ah, the foothills.
3 comments:
Nice to see what you all have been doing these Friday afternoons. Rylie surely is a cooperative dear. l&b
Amy-
Yes, she does nap for a couple of hours! We have to give her a little benedryl, so I don't know if that helps or not. :)
Hi you guys! I finally got into the blog site. I enjoyed looking over the new pictures and comments. I will keep you all in prayer. It looks like the Ronald McDonald House is loving on Rylie real good. I never have seen such a large bunny! I am keeping you all in prayer and telling so many others to pray about the insurance and the timing of the transplant. May the Lord bring great favor and direction to you as you seek His will. Until then, cherish as I know you already are this special one on one time you are having together. Love you and wish I could give Rylie as special hug. Keep me posted. Love, Prayerz and Hugz, Miss Georgia
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