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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
6 comments:
Hi Jade. These are great pictures from your new camera. Hi to "aunt" Julie, too. Arches area IS gorgeous. Looks like you all had a wonderful break! Hugs for Rylie. love and prayers. L&B
What awesome pictures and great video...just too cute! Looking forward to more...keep dancing Rylie! Love you guys! Jo & Leonard
Great video - I enjoyed receiving Rylie's blown kiss :) JL
Rylie you look wonderful. Keep up the good work.
Love,
Gracie's Noni
What a joy to watch that little video...keep 'em coming! Rylie is just so CUTE! love Deb in Cal.
Sorry it took so long for me to get back to comment! I love the video!
I think of all of it, my favorite part was when I saw her touch her head! lol. Lauren's PT was so excited when Lauren was limber enough to touch the top of her head (she just assumed Lauren never would because of the limited shoulder movement of most Hurler's kids). So as cute as that video was, my first thought was "Yay Rylie! She touched the top of her own head!"
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