Rylie's enzyme test came back in normal range, and her engraftment is still at 100% donor! We are so very thankful each time we hear this news.
What's new for Rylie?
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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
6 comments:
Hooray! That is such excellent news about her 100% test score! Way to go Rylie! We love the new glasses...especially with the tie-dye. What a wonderful fashion sense! We are always so glad to hear what's going on, and we can't wait until we can swim in that new pool! XXXOOO Love, Cheryl and Torie
I love your news! Thank you for the love you sent because of my new degree! :) Rylie, we need a new plan for a visit to our house! As soon as we're back from IA!
Excellent news on the test scores! Rylie you are looking real "groovy" in the tie dye and love the new glasses. Stay cool in your new backyard pool. Love you guys! Jo & Leonard
I just caught up on Miss Rylie and loved all the pictures...and especially the news of her good test results. She's getting so grown up and looks so happy! You all are great parents...for sure! love Deb
This is great news!!!!!!!!!!
Hi Rylie. Wow, I like your glasses but your tied dyed shirt, now that's way cool! I'm so glad to hear that your engraftment is 100%.
Hurray!
I hope to see you and your family soon. By the way, do you guys like to camp? Maybe we chould meet up somewhwere in the mountains and have a camping trip!
Torie's Papa Tom
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