I haven't been taking many photos lately, but here are a couple from the last week.
Hi from Rylie and Dora (after bath time)
Practicing her song
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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
3 comments:
cutie pie!
By the way, there's a little boy with Hurler who just arrived in MN for transplant. He's in the same trial as Rylie was (Gracie was too young for the interthecal trial), and his name is Brinley. His caringbridge is http://www.caringbridge.org/visit/brinleycraig if you'd like to check in on him.
We need to organize an email conference with the Blancheri's and find out if we can coordinate our visits in MN and have a little reunion. :)
She brings a smile to my face every time I see her. Thank you for sharing her pictures.
What a perfect prop she has now. Although the syringe microphone was pretty darn inventive of her. Great pics!
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