We got the green light to take Rylie off of CSA completely, so please be praying that Rylie's donor cells do not flare up. Her skin has been doing much better lately, so we are hopeful that we can permanently say good-bye to the drug, and the hair on Rylie's back (side effect of the drug)! It won't be missed.
Other than the CSA, Ry is only on two other drugs that will be taken off once she's been off of the CSA for a bit longer. And of course she will continue to take the thyroid med until hers decides to work on its own.
Rylie's new words:
cak (clock)
roo (room)
ah-ma-ma (animal)
6 comments:
We are so encouraged by this news and are so thankful for being able to check up on you all often... her pictures and new words just delight us! Happy Valentines Day from Gary and Deb
Wonderful news...praying Rylie continues to do well.
Love,
Gracie's Noni
Yay, Rylie!! And Jade and Lyle. What a big milestone for you. We'll pray everything continues to go well, and that we can all soon party for her 1 year anniversary!
Congratulations Miss Rylie. You are doing AWESOME! We think of you all often.
in our thoughts and prayers,
The Hilgers from Manhattan
Hi guys!! I had lost Rylie's website a while back. I wrote it on a piece of paper which I just found while cleaning!! I have tried so many times to figure it out (I knew it was something blogspot :) Anyway, I'm so happy to hear that Rylie is doing so well and as cute as ever!! I see that red hair is coming back - YAY!! I just love red heads :) I hope the rest of you are doing well. We miss you guys. Take care & God bless!
Love,
Shanna, Sean, Deven, Wes, & Ireland Meyer
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