My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
She is adorable! I am so glad that Rylie is doing so well!! We are continuing to pray for her and that you all have safe travels and an amazing Christmas with family!!
"Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him and he will make your paths straight. Do not be wise in your own eyes; fear the Lord and shun evil. This will bring health to your body and nourishment to your bones."
4 comments:
Hi Rylie, I love your new glasses and all the cute pictures. We'll see you soon! love and prayers, GrannyB abd G'dad
She is adorable! I am so glad that Rylie is doing so well!! We are continuing to pray for her and that you all have safe travels and an amazing Christmas with family!!
Cute pics and cute glasses... and even cuter Rylie! I see no ng tube... is it permanently gone???
We'll be thinking of you as we celebrate over the next few days... we have the ultimate gifts to thenk Jesus for!
Rylie, you're becoming such a ham! And we love to see you sipping the sippy cup! Good girl. Hope to see you soon. Love, us.
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