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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
6 comments:
PRECIOUS! Gary and I just love seeing these pictures...free of hospital rooms and all that goes with it...just playing and enjoying the outdoors in a cute hat and outfit! The pictures just make us smile!
Pretty girl! Seeing the pictures if the best!!! I hope the upcoming surgeries go well and that she gets home quick! Your parents looked great at church this morning! They give an update every Sunday and they were positvely excited about you guys getting home!!!
She is adorable! That is great that you were able to go out without the mask. I've been praying for you all a lot this week.
We would have to agree -- "cute as a button"! See you soon. love and prayers, L&B
This is all such great news! Sweet Rylie and her superstar parents are never far from our thoughts and we'll continue to send prayers your way. On the top of the prayer list: an appetite for Ry, great test results, and of course a safe journey home - yea! :) We'll be in CO the first of September and would love to see you guys. Keep up the good work Miss Rylie! -j&k
Oh my goodness! Rylie, you look great!!! It's great to see you mask-free, although you look pretty cute with it on as well.
Good luck with the NG tube and start eating soon. That skinny model looks is out. :)
Uncle Mack
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