Today's appointments went well. We talked with the Bone Marrow Transplant (BMT) doctor this morning and then labs and a few other tests after that. Rylie did a great job giving as much blood for the labs as needed. Although I'm dreading the surgery to replace her Hickman catheter that is scheduled for Tuesday, March 18, it will be nice not to have Rylie poked for every lab or infusion.
Right now Rylie is scheduled to be admitted into the hospital next Tuesday for her catheter placement. The next day she will start to receive the drugs to prepare her for the transplant. She'll receive her cord blood on March 31. She'll have to be in the hospital for at least 28 days after the transplant in order to give her body time to build up some white blood cells. If at that point things look good, she'll be able to be released to the RMH to stay with us, although she'll still be in isolation until her immune system is somewhat back to normal.
4 comments:
Hi! Glad things have fallen into place with long drive, long first day of appointments, and now settling in to Ronald McDonald House. love and prayers. l&b
Thinking about you, sending our love your way. The Messinas
Jade and Lyle...you and Rylie are all in our thoughts and prayers. Pastor Steve and friends at Foothills Community
Hi guys!
We're so glad a room opened up at the RMH! We hope all the tests have gone ok thus far. I know you guys aren't looking forward to any of this -- it really is no fun! :( But you guys are such wonderful, godly parents and are doing the very best thing for precious Rylie! We continue to lift you all up in prayer daily and trust God is going to do amazing things in Rylie!
Love and blessings,
The Wards
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