Things here aren't getting resolved quickly, so it looks like we'll be heading home this weekend to fight the battle there. We're contacting lawyers, legislators, and media.
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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
Blog Archive
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2008
(144)
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April
(21)
- One week out
- Day -8
- Hospital life
- Rylie's day
- Admission
- Next phase
- Little Miss Sunshine
- The plan
- High school cheer
- Tomorrow is here!
- RMH Week 7
- Not giving up yet
- Dancing pigtails
- By the way
- Greed
- More of the same
- No news isn't always good news
- Waiting in KC
- Mr. Hickman
- Surgery scheduled tomorrow
- Decisions
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April
(21)
4 comments:
Way to go Rylie!!!
We love you all!
This is SO great. Her joy at the music is precious. And I also love the camera-woman's efforts to hold back the giggles. Thanks for sharing; I'll hold this moment in my heart! (The deleted comment was from me, when I was signed in as a friend whose blog I'm working on. :))
That's awesome! She's precious & quite the dancer! Love the pig-tails!
Hope things get resolved early next week.
Love,
The Wards
Love the "do"...laughed out loud at her dancing pigtails...we're praying hard. The Stratmans
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