Decisions

As most of you know, decisions aren't my strong point. We're trying to decide what to do. Pack up and go home and wait this out? Fly home and wait this out without our stuff? Drive to KC and then home? Have Rylie's catheter put back in here in Minnesota, have another ERT, then go home? Or have Rylie's catheter replaced in Denver and continue ERT there? 

Would someone just tell us what the very best thing is? 

I guess we probably wouldn't listen if you did tell us. :)

Today Rylie got to meet Chance, the other Hurlers boy that is here for a transplant. He is 12 months old, and he is 19 days post transplant. He looked really good for just going through so much. I guess that they are right when they say babies are so strong and resilient. We pray that God will continue to keep Chance so strong while his body recovers and the donor cells take over.

That is all we have to report right now. Who knows where we'll be when we post next. Minneapolis? KC? Denver? Duluth? Disney World? North Carolina for Cory and Kyle's wedding (we wish!)? But we aren't done with appealing the insurance's decision. Wherever we are, we will pursue treatment to be covered by Sun Life. We're just finding that it takes time to get through the red tape. 

Signing off for now.