Rylie had her first blood transfusion today and her first upset stomach episode. She is starting to gag when we give her the oral medications she needs as well. Some of them will probably be switched to IV meds soon. Even though we're seeing changes in Rylie's behavior, she is still acting happy and lively. She had visitors from the occupational therapist and the speech therapist today. She did great during both visits. She is also having physical therapy during her stay at the hospital, but she got the day off.
We hope to post photos soon!
4 comments:
Thanks for the update! I'm sorry to hear that she's starting to feel crummy! We're praying for all of you!
Love,
The Wards
Sending our love to you all and praying hard here in Kansas!
jo & leonard
What a trooper! Keep up the smiles, Rylie! Hang in there. You're all in my prayers!
we're counting down with you...praying for health and a perfectly successful procedure...love and prayers..Gary and Deb
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