I'm getting the hang of walking with a "tail."
Where's the escape hatch?
Give me knuckles!
I love my new doll! Thanks, K & J!
Followers
About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
8 comments:
Great photos! Lauren loved that red chair. By the time she got out she was climbing all over it and pushing it around. They have them at our local library and she sees them now and says "MINE!" (and then the adorable little booger tries to push some kids twice her size out of it!)
SO VERY HAPPY that you re finally where you need to be and an just figuring out this google reader stuff... to help me keep track of new posts.
You are doing great Rylie!
Jade and Lyle,
I met Jade years ago when I was visiting Kansas to stay with Nikki (Colyer- back then). Nikki has forwarded me your blog and I just wanted to let you know that I am praying for you and your precious little girl. As are my family and many other people here in PA.
God Bless You,
Anne Jones
Love the pics -- such a cutie and that smile..... Give that Rylie a big kiss and hug from us. Love ya!
Jo & Leonard
Love the photos! We have been checking in on you, and you are always in our prayers. Rylie is precious, and it makes us smile to see the pictures.
Much love to you all,
Susan and Paul
Fantastic pictures!! What a precious smile. awww.
We are so happy to hear you are doing so well!! We do miss seeing you at RMH, but we are so happy you are finally where you need to be. You are such an amazing little girl and we are so happy we met you and your lovely parents.
Love,
Shanna, Sean, Deven, Wesley, and Ireland Meyer
Thanks for sharing such great pictures. We wish we could be there to hug Rylie in person, but are glad the doll is doing a good job standing in until we can get there ourselves! :) We continue to pray for you all every day and look forward to more good news and cute pictures. -J&K
Seeing pictures of Rylie made our day! Best wishes for a good weekend, JL
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