Rylie's WBCs came back at .4 this morning! Once Rylie's WBCs come back .5 or higher, they will start looking for the absolute neutrophil count (ANC) which are the fighter cells. We want lots of those!
I did find out that the rash Rylie has could actually be a good sign that the donor cells are engrafting, and it isn't necessarily GVH. The doctors aren't sure. Her rash has moved from mainly her arms to her legs and a few other places. The creams are helping, but poor Rylie isn't a fan of having the cold cream rubbed on her four times a day. The doctor told us that there aren't many absolutes in this world, but he could absolutely tell us that Rylie wasn't going to like the cream. He was right.
Followers
About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
11 comments:
Hi guys. I can't think of any better news to read this morning. love and prayers. l&b
.4 YEA!!!!
Is there a reason why they can't warm up that cold cream?
This is great news...keep up the good work Rylie! Love ya guys! Jo & Leonard
GO WBC's GO!
Rylie, Keep up the good fight.
Thinking of you all.
The Hilgers Family
What great news!!!
~bess
wa-hoo from California! Gary and Deb
Encouraging news to read tonight. We follow Riley's progress every day. Hugs and prayers as always. Kathy and Dick Klein
Hey Rylie, It's me, Wyatt. I just wanted to say HI! Mom, Dad and I keep praying for your new cells to grow, grow, grow. Don't let that little girl "down the hall" :) get you down with her high numbers. I had the same numbers as you do at this point. Slow and steady just like the turtle in the book. You should get your Mom to read it to you, it's good. I hope you can get a wagon ride soon. They are the best wagon rides you will ever have! At least it seemed like it at the time. Mom says I was suppose to be in bed an hour ago so I better go. Talk to you later.
Your friend Wyatt (and Mom and Dad)
Rylie's numbers are moving in the right direction! May you all have courage and strength and feel the love that surrounds you.
Woohoo! Rylie, you'll be caught up to us before you know it! We're really pulling for you down here in 505. Thanking of you all the time and maybe soon we'll see you in the hallway.
xoxox.
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