The IV machine beeped at five minutes past noon signally the last dose of chemo was complete. We are thrilled to be done with this phase. Rylie is still going strong, but certainly does not like her oral meds. She's slowing down some as well, and is completely on IV nutrition now since she can't keep any food down. :(
Tomorrow is the big day. The nurse told us that the transplant will be at 1:00 PM. The transplant itself won't take long, and we have heard it is a little anticlimactic. They expect the cord blood will be completely infused over a 20 to 30 minute period. Rylie will stay in her room for the entire thing. There are no knives, no sedation; it's just like a normal blood transfusion. After the transplant, Rylie will be working hard to build a new immune system from scratch.
Below is one more video this side of transplant. As you can see, Rylie is strong! For all the mothers and grandmothers, don't freak out when you see Rylie about to fall out of the crib. Dad's arms are close by in case of a topple. (And try to ignore the very proud momma in the background!)
13 comments:
Glad to hear and see that Rylie is doing good and still 'strong'. She is very cute in the video. She needs one of those inflatable muscle suits then she will be set. Thanks for the post we look forward to reading about how things are going. We are praying for the transplant to take hold and the cells to grow 'strong' too. Wyatt sayes HI! Take care and try to get out for a break when you can.
Hi Rylie, Yes, you are going into tomorrow s-t-r-o-n-g. Maybe you'll feel like eating a little bit from time to time, but we're glad to hear about the supplementary nutrition you're receiving so you can stay strong. Thanks L&J for posting the video! love and prayers and rest well tonight. L&B
Yay Rylie! So cute! Reminds me so much of Lauren could do at that point... Rylie really looks great! Thanks for the awesome video! Apparently I'm excited because there seem to be lots of !!! <--these! :-P
Have a great day and HAPPY REBIRTHDAY!
Rylie, you are too cute on your fancy stage! Can't wait for you to bring The Rylie Show back to Denver. We're praying away for you and your family. We love you.
Awww! So cute! Good luck tomorrow Rylie!!! I know you'll do great!
Way to go Rylie -- boogie on down and kisses back at you! Lyle & Jade thanks for the video -- too cute! We are thinking of you all today. Love and hugs!
Jo & Leonard
So today is the day we've all been hoping for! We're so excited that Rylie has made it through her chemo and will receive the transplant this afternoon! We're praying hard for excellent results!
Hope you're all hanging in there!
Love,
The Wards
Thank you for the great videos and pictures. We love to see Rylie's successes. You are in our prayers 24/7.
Love, prayers, and hugs,
MA classes and staff
Gary and Deb are awaiting the good news ...prayers coming Rylie's way from LA!
AN IRISH BLESSING FOR A STRONG IRISH LASS!
May the good saints protect you,
And bless you today.
And may troubles ignore you,
Each step of the way.
May you live a long life
Full of gladness and health,
With a pocket full of gold
As the least of you wealth.
May the dreams you hold dearest,
Be those which come true,
The kindness you spread,
Keep returning to you.
OHHHHH my sweet lands is she not the coolest little thing ever!! shes got some great moves. I actually watched this after putting Olivia to bed and she came into the office a few minutes ago because she heard me giggling..so naturally before sending her back to bed I let her witness the magnificent moves of a one Rylie Hays! We love you guys!!
I watched this video again....i love this little lady she always makes me smile so big!
I love those chunky cheeks and her beautiful hair!!! What a sweetheart! She'll be running around, med-free, before you know it!
Post a Comment