Rylie's WBC yesterday was still 0.4, but she made up for it today by jumping to 0.6. Her absolute nuetrophil count (ANC) is 0.3, which is a good start. More good news is that Rylie hasn't needed any oxygen for a couple of days now. The bad news is that Rylie's liver is enlarged and her liver counts are higher than ever. They did another ultrasound yesterday, and the doctors still feel that Rylie doesn't have VOD. At least we can relax a little about that. For the time being, we're waiting to see what the doctors want to do about the liver; I'm not sure they'll be able to do much about it right now.
Rylie's rash is so much better, and we're tapering on the creams--whew! Unfortunately, Rylie has been sick more and more lately, and recovery has been longer than we thought it would be. We're hopeful that Rylie's new WBC will help her feel better as soon as possible.
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About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
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