Day +14 (2nd post)
Once again things change pretty fast in the BMT world. Rylie's liver counts on Monday were fine but today her levels were high and she became very jaundiced by mid-morning. This along with her fluid retention had us very scared about the possibility of Veno Occulsive Disease (VOD). VOD is yet another complication that can arise from subjecting the body to intense chemotherapy. This side affect could have devastating results. After two ultrasounds today and many hours of waiting, the doctors are comfortable that Rylie does not have VOD. Thanks be to God. She does have some severe sludge buildup in her gallbladder which could be what is backing up her liver and creating the jaundice appearance. The good news is that jaundice is not a problem for kids Rylie's age. So we are staying the status quo for now and will likely have more ultrasounds in a few days. Rylie labored breathing and congestion was improved today. We pray for a nighttime of similar results. She also received a second transfusion of platelets as her numbers are so low her gums are bleeding at times.
Thanks for all your support. It's days like this when we know so many people are loving and praying for Rylie. God bless and good night.
Lyle
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12 comments:
Rylie,
We are praying for you!
Much love,
Gracie's Noni & Munts
Yikes. Sounds like a fun day today. :( Rylie, we're pulling for you, honey.
Love,
Gracie and Sarah down the hall
It's one day at a time, isn't it? I hope tomorrow brings some relief and reassurance for you all. Love to you!
Kristen
As the tears stream down our faces, we our sending petitions for Rylie to our Heavenly Father.
We know God answers knee-mail.
Hugs,
Jolene and your MA family
Jade, I am thinking of your family. Your daughter is such a ray of sunshine!!!! I am glad that Kim Freund posted your blog on her facebook. I am praying for you guys!!!
Erin (Hoagland) Huffman
Hang in there! I pray that today will be better and that Rylie will be back to smiles soon.
Hugs,
Janell
Gary and Deb are praying for you all and reading the updates every day...esp. that the white cells take hold. We send our love.
Thinking of you today, as always, with love and prayers. l&b
Jade, I just saw Kim's update on Facebook...I haven't been able to stop reading the blog...I'm praying for you, Lyle and Rylie...
Love,
Bess (Collene) Bonewits
We're praying that Rylie's tough days will be over quickly, so she can get out to hike the hallway and ride the slides soon. Love from CO.
Hi Rylie,
We've been following your every step. Grace and mercy are with you. We miss you in Colorado and we send you love and blue skies.
Lee Ann, Dan, the boys and Ben and Thelma.
We are reading your blogs almost every day and want you to know we think and pray for you continually! We know the Lord has an awesome plan for beautiful Rylie! Rylie is so blessed to have such amazing parents. We love you all!
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