Rylie spent most of night awake trying to prevent me from sneaking in some oral meds. She was pretty nauseated, but rebounded very quickly asking to read or play. It was a short, long night for us.
Rylie has been having some O2 saturation issues again. We are all puzzled by this as she sounds better than ever and is not laboring to breathe. However, she is struggling to maintain an acceptable saturation level. She has had blow-by oxygen the last three nights. A chest x-ray last night was clear. So the doctors aren't sure what the issue is. If Rylie needs oxygen again tonight they will keep us here. Rylie will be getting some nebulizer treatments today with another outing in between to see if it will help with the O2 sats.
Lyle
3 comments:
Wow, that outing was great! It must be so nice for Ry to get outdoors.
I'll pray her O2 levels can be where they should be, so you can all be together again at the RHM!
Kristen
What heartwarming pictures. So happy that Rilie could be outside on such a beautiful day. We will pray about the O2 levels. You are always in our thoughts.
XXXX
Kathy/Dick
Here's to knuckle power!! What a great outing. So good to see you all in the pics. We catch up when we can and appreciate being able to stay in the loop. I hope you can feel our prayers and thoughts- they are with you always.
Much love,
Susan and Paul
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