Day +46
Yesterday was a trying day as Rylie continued to need more respiratory intervention. The doctors switched her oxygen to a hi-flow system that mixes air and oxygen to help pressurize her lungs to assist in her breathing. This seemed to relax her. The primary concern is her respiratory rate. She is breathing pretty rapidly. The room was a flurry of activity with nurses, doctors, and respiratory therapists evaluating Rylie and bringing in other equipment to help Rylie breath if it became necessary. Scary stuff.
Rylie was otherwise happy. She finally went down for a nap around 4:00, but her respiratory rate continued to climb. The doctors ordered a bipap machine which requires Rylie wear a mask. This obviously woke up the sleeping little girl. The therapist couldn't get the mask within a foot of Rylie's face without her protesting intensely. However, Rylie did perk up and play again for several hours in the evening.
Last night went pretty well for Rylie and Jade. This morning the doctors are happy with Rylie's blood gas numbers, which means her body is compensating for the high respiratory rate. The doctors said it is the same physiological effort that takes place in marathon runners. The problem is a person cannot continue this effort indefinitely. She needs to rally today to avoid a possible bronchoscopy tomorrow. The bronchosopy may be needed since we still don't know if this issue is caused by the residual affects of the adenovirus or if there is something new on board. So let's all put on our rally caps and pray for improved respiratory status for Rylie. Let's get to the finish line of this marathon within a marathon and get back in the recovery and rebuilding race. Good thing our little marathon runner is Rylie Strong!
Lyle
11 comments:
I'm bummed to hear that Rylie is back in the hospital! We will certainly pray that her lung function improves VERY quickly! I'm sure this feels like a step back for you guys! Go, Rylie, go! You can finish this marathon!!!
Love,
The Wards
We are in Rylie rally mode with you. Please take care of yourselves, too.
Sending love and prayers,
Susan and Paul
Gary's rally cap is St. Louis Cardinals...and it's on! We sure do send our love and prayers that the marathon is near the finish line. Thanks Lyle and love to you and Jade. Deb
Rylie Rally Mode! Love it.
Breathe deep and slow, dear Rylie. Suck in the love around you, and rest up for recovery back at the RMH.
We are feeling your anxiety ~ just remember you have an army of folks thinking of you, supporting you and praying for Rylie's respiratory health.
YES! Rylie Strong!
love,
Susan, Clark and Robin
Got my Rally Cap on. Let's go Rylie!
we're rallying for you Rylie! breathe, slow and deep.
love,
kristen, kent & fia
Sending germ-free hugs and kisses your way Rylie!
Run Rylie, Run!
love,
Gracie's Aunt Hys, and cousins Nuvy and Van.
Hang in there Rylie-girl! Hope to see you back here soon!
Liv and I said extra prayers and gave Rylie get healthy high fives tonight before bed. We're rootin for good news and thanking God for making that kiddo so strong and determined!!
Love you guys
Alisa & Olivia
So sorry to find out Rylie was back in the hospital, but at the same time glad she's where she needs to be. Just know you three are in our thoughts and prayers every day! The rally cheers are coming your way Miss Rylie -- Stay Strong! And, take care of yourselves too Lyle and Jade! Love ya!
Jo & Leonard
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