Tuesday, June 17, 2008
Day +41
There must be an army of you out there praying. There's been a miracle! Rylie won't be having a bronchoscopy. Yea, yippy, yi, yea! This morning the pulmonary doctor found out that Rylie is on a "do not sedate" list. We were unaware of the list, but I guess since Rylie has Hurlers and has had problems with intubation in the past, they don't want to take the risk of sedation unless completely necessary. In this case, they're pretty sure the reason for the O2 saturation drop is the adenovirus. After a lot of discussion, we're scheduled to go back to the RMH for good TOMORROW. Rylie will have to have an 02 monitor and oxygen for when she sleeps back at the RMH. The docs expect Rylie's O2 to rebound within the next couple of weeks. I'm relieved that we don't have to spend those weeks in the hospital, and we can just monitor Rylie ourselves. Plus, we'll be at the clinic almost every day at first, so they'll keep a close eye on her as well. Yea, yippy, yi, yea! Thank you all for praying. And thank you, Jesus!
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13 comments:
The Stratman's are buckled onto the Rylie-coaster with you! love and prayers..Gary and Deb
This is what we've all been waiting for!!! This is good news and here's to a smooth transition for all of you! God does provide! Love, hugs and, of course, knuckles all around!
Jo & Leonard
YAY!!!! Prayer does work... I love seeing it in action, so inspiring!
HUGS!
Excellent news! Love, JL & Joe
Thanks for the pictures. You guys look fantastic. We're excited about the great news. Lots of love and prayers to you.
Jake, Jules, and Ben
Checking Rylie's blog is one of my favorite things to do each day and it's even better when the news is so great! I'm sure a change of scenery will do all of you a world of good and Rylie will continue to grow stronger every day. Love and prayers from KC! - j&k
RMD here comes Riley! What a fantastic turn of events. Already looking forward to the next posting. We feel much closer than miles away!
Hugs to all.
Kathy and Dick
Hi--back home after easy flight, some supper and visiting time with GrPa Wendell and Aunt Susan. They were glad to hear updates and see a few more pictures. It was great to be with you, to see Rylie regaining strength and confidence these past weeks, and to help get RMH Rm 435 "rylie ready". (Two leaps forward and one step back is steady progress in my book!) You guys are awesome (!) and the Docs surely made it easier for me to leave this afternoon. So glad Jordi and Palladin will be around to help you with the transition and "go-fer" jobs. G'night to all. love and prayers as you move into the "next phase", Granny B (and G'dad Larry,too.)
Good night, Rylie. Hope you and Mom and Dad are soundly sleeping with the fantastic news that you'll all be sleeping together again soon! Congratulations! It was great to see pictures of your adventures outside. It sounds like those are just the beginning. :) Love and prayers to you!
Good luck, Rylie.
We've all been thinking and praying about you.
See you soon, at RMH!
xoxo
Gracie's Aunt Hys.
YIPPY is right! We're so excited for you guys to be back together at the RMH! This has been such a long time to be living this way! So I know today is a huge day! We're praying that Rylie's O2 levels will indeed go up soon!
Hope this day is a great one!
Love,
The Wards
Yea! Great news about canceling the bronchosopy. What a relief! Happy to hear that you will be 'all together again' at RMH. Love, 3D
Wonderful News! I'm sure that Miss Rylie will enjoy her new home away from home. We'll be thinking of you all during this transition. The pictures were great. Thanks for sharing.
Lyle, please forward on a mailing address to Jason's email when you get a chance. THANKS!!
All our love, The Hilgers
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