Wednesday, June 18, 2008
Quick update
Just wanted to let everyone know that Rylie is back at the RMH with us as of 6:00 p.m. today. We're trying to get the hang of all the meds, oxygen tanks, and O2 monitor. It might be a long night! Tomorrow we go to clinic at 9:30. It will be a long day since Thursday is Rylie's weekly enzyme treatment. She only have three more ERTs, and then we won't have those long infusion days. We'll post more as soon as possible.
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8 comments:
Hooray! What a special day! Hope the night is not too bad.
Looking forward to hearing more about how this transition goes! We're praying for a smooth one!
Love,
The Wards
Hooray! We're so excited for you. Progress, Progress!
YeeeeeHaaa!! Rylie's in the Hiz-ouse!! Knuckles all around. And hugs and prayers. And wishes for rest for all.
Sooooooooooo glad to read this!!! love and prayers, L&B
I'm sure the smile on my face is not as big as all of yours combined...how wonderful it is for you all to be under one roof again!! Sending extra special thoughts and prayers your way as you begin this next leg of the journey! Love, Jo
This is great news. And yes, you do have an army praying for you, Lyle and Rylie. Thanks for keeping us informed each day. I look at it each day with anticipation and hope.
Jules
Hope tonight is easier -- and you guys get some sleep!
love,
susan and clark
We are so excited with every step on the road to recovery! We head back to Denver tomorrow--if there is anything we can do for you there we are always available.
Love You,
Joyce and Everett
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