Day +39
Rylie still needs some extra help with the blow-by oxygen when she sleeps or her oxygen saturation level slips to the low 80s. She used to be in the high 90s to 100. Her need for the blow-by has stumped us all, because she seems to be doing better than ever. Of course we hope there is an easy fix to the issue, but for the time being, we're staying in the hospital. Fortunately, we had the opportunity to bring Rylie back to our room at the RMH this afternoon when she got to be off her IV pole. She loved the change of scenery, but she was very tuckered out after two hours of exploring and walking along the couch and the window. Even though we are greatly disappointed by not being together during the night again, we're thrilled to have Rylie feeling so good.
Granny B was able to change her flight out from Saturday to Tuesday afternoon. My brother is coming up on Tuesday night to help us. Hopefully we won't need so much help soon, and we can just look forward to visitors!
2 comments:
Your posts mean so much to all of us as we anxiously await news. Thank you! Better to wait a few days if necessary before full time at RMC.
You are all a tremendous inspiration. Our prayers remain with you.
XXX
Soooooo close, Rylie! Soon, soon, soon, you'll all be under the RMH roof *together*. Lots of love to you guys!
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