Rylie seems to be breathing better today. She's more relaxed and playful, which is always a good sign. She had another chest x-ray to make sure things still looked clear, and they do. We hope this is the beginning of things to come. Ry is getting some extra fluids tonight via IV with her adenovirus medication. We hope this doesn't trigger any fluid retention, but the doctors are continuing the diuretics to help.
Here's hoping we have a boring and sleep-filled night! Zzzzzzzz . . .
Many thanks for all the prayers, comments, and love. xoxo
Followers
About Me
- Rylie Suzanna
- My favorite things are chips and salsa, swimming, and music. I also love being spoiled by my family. Since being diagnosed with Hurlers in November 2007, my parents have set up this blog to update friends and family on my treatment, as well as my latest tricks.
3 comments:
Thanks for the update. Glad Rylie had a more restful day. Do hope you, also, have a restful night!
love,
Susan and Clark
Thanks so much for the update! So happy to read the better news. Here's hoping you all sleep well tonight. Tell Rylie that Uncle Mack will be giving her a stern talking to about all of this fluid retention nonsense! Hugs and masked kisses to Rylie. Take care of mom and dad!
Hang in there, Rylie girl! We sure hope that each passing day is better than the one before! I'm glad to hear that the chest x-ray was clear! It's just amazing to me the roller coaster you guys are on -- just when things are looking up for you all, something seems to get in the way. That must be frustrating! But she has come so far, and we're SO thrilled for that. Wish we could be there to help! Please let us know if there's anything we can do from here.
Hope you had a restful night!
Love,
The Wards
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