Maybe Sunday?

Since Rylie has had fewer fevers and her body seems to be responding well to the new medication for the virus, we got news today that the doctor is going to try to get Rylie back to the RMH on Sunday! After 49 days at the hospital, we're more than thrilled at the thought. Once we are discharged, we'll go to the clinic at the hospital every day (including the weekend) to get Rylie's blood drawn for labs. If she needs platelets or blood, they'll be able to give that to her there, along with her antiviral medication. 

Another big struggle for Rylie has been keeping down oral medications. We are trying to switch a lot of her medications to oral instead of IV in preparation of going back to RMH. I think she has at least 6 medications that she needs to be able to keep down every day. Some of those are taken twice a day. We're overwhelmed by this since Rylie still throws-up several times a day, even without yucky medicine being forced down her throat. 

Rylie's WBC and ANCs are declining since she has gotten off of the growth factor drug. Today's counts: 3.1 and 1.7. We hope her body adjusts soon and starts to build her counts on her own. Some of the medications that Rylie takes is still suppressing her immune system, so even though her counts have been higher lately, her cells are still too young and too suppressed to work like a normal immune system. The doctors say that it can take 9 to 12 months for her to build a strong immune system. Guess she'll get familiar with her mask and not going out in public much until she is off those medications. 

Please be praying that we can leave the hospital soon and the transition is easy. Thanks, everyone!